Newsletter 8: October 2026

Small Moments That Keep Carers Going

In this edition of our newsletter, we share an article written by Jurgen Schwarz, the founder of Dementia Counselling. He looks into Small Moments That Keep Carers Going.    

A suggestion for a carers’ group on how to conduct a session, ‘Ask the Expert’, but with a difference.

Jurgen gives you time to reflect in the Reflective Pause. 

As usual, there are three current dementia related articles in the ‘Picks of the Month’.

And Jurgen offers this month’s thought.

Small Moments That Keep Carers Going by Jurgen Schwarz

Finding connection, comfort and meaning in the ordinary moments of caring. 

When we think of resilience, we might picture big achievements, like getting through tough times or finding new ways to cope. But for many people caring for someone with dementia, resilience often appears in the small, everyday moments instead of dramatic breakthroughs. 

It could be sharing a laugh over something unexpected, hearing a familiar song that brings a smile, or having a morning when getting dressed goes smoothly. Sometimes, it is just sitting together with a cup of tea, without needing to explain or fix anything. 

These moments might seem small compared to the demands of caring, but they offer something valuable. They give us a short break from the responsibilities, worries, and emotional challenges that come with caring.  

The quiet strength of small moments 

Caring for someone with dementia often means constantly adjusting. What worked yesterday might not work today. Routines can get harder, conversations may change, and even simple tasks can take patience and energy. 

With all these challenges, carers might think a good day is when everything goes smoothly. But even on tough days, there can still be moments worth noticing. 

Perhaps your husband, who has struggled to follow conversations, suddenly makes a joke that reminds you of his familiar sense of humour. Perhaps your mother reaches for your hand while you are sitting together, offering a moment of closeness that neither of you needs to put into words. 

These moments do not take away the challenges of dementia or make the rest of the day easier. But they remind us that caring is not only about what is hard or what has changed. 

Psychologists sometimes call these small ways of coping ‘micro-resilience.’ For carers, this could mean finding a moment to laugh during a hard afternoon, stepping outside for a few minutes, or noticing that something nice happened today, even if it was small. 

Resilience is not always about doing more. Sometimes, it is about finding a bit of space where nothing extra is expected from us. 

Connection can take unexpected forms 

As dementia progresses, the way people talk and connect can change a lot. Conversations that used to be easy may become hard, and shared interests might fade. Carers may grieve parts of the relationship, even though their loved one is still there. We remember the conversations we once enjoyed, the decisions we made together or the familiar expressions of affection that now seem increasingly rare. 

But connection does not always go away when talking becomes hard. Sometimes, it just looks different. A shared look across the breakfast table. Singing along to a song from many years ago. Laughing together at a television programme, even if the storyline is no longer understood. Or simply enjoying the reassuring presence of another person. 

These moments might be brief and may not happen every day. Still, they let us enjoy the relationship as it is now, instead of always comparing it to the past. 

This does not mean carers have to find something good in every moment. Some days, trying to connect might lead to confusion or sadness. Sometimes, carers are simply too tired to try. 

But when a moment of connection does happen, maybe we can let ourselves enjoy it without worrying if it will happen again. 

The reassurance of familiar routines 

When daily life feels uncertain, small routines can bring a comforting sense of familiarity. 

For some carers, this could mean making breakfast the same way every morning. For others, it might be a short walk after lunch, listening to a favourite radio show, or sitting together in the garden when the weather is nice. 

These activities do not have to be exciting or have a big purpose. Their value is often in how ordinary they are. 

Familiar routines can comfort someone with dementia and give carers a bit of structure. They create familiar moments in the day, even when other parts of life are unpredictable. 

Some routines are just for the carer. 

Perhaps it is ten minutes with a book before everyone else gets up, a phone call with a friend, or a quiet cup of tea. These small personal rituals help carers keep a sense of themselves outside of their caring role. Pleasure may eventually become difficult or impractical. Rather than trying to preserve every familiar activity, it may be more helpful to consider what the routine offers emotionally and whether you can maintain that experience differently. 

If an afternoon walk is no longer possible, maybe sitting by an open window or spending a few minutes in the garden can still bring some enjoyment. The activity may change, but the sense of familiarity can remain. 

Meaning does not always arrive as a breakthrough 

Carers are often told to stay positive, enjoy the good days, or find meaning in what they do. While these messages mean well, they can sometimes feel like extra pressure. 

Not every hard experience leads to personal growth. Not every challenge brings a hidden lesson. Carers shouldn’t have to turn their tiredness, sadness, or frustration into something meaningful just to justify how they feel. 

Still, meaning can sometimes appear quietly, even if we are not looking for it. 

It might show up in the satisfaction of making someone comfortable, sharing a familiar meal, or noticing that a tough afternoon had one peaceful moment. 

Meaning can also come from things outside of caring, like talking with a neighbour, enjoying an evening with friends, or simply doing something for yourself. 

These moments do not have to be achievements. They do not need to teach us something or change how we feel about everything else. Simply the fact that, for a little while, we were able to enjoy them. 

Allowing the ordinary to matter 

When caring gets tough, it is easy to focus on everything that needs doing, everything that has changed, and what might get harder in the future. 

With so much going on, small moments of pleasure or connection can be easy to miss. 

One gentle way to support ourselves is to notice these moments when they happen, without turning them into another task on our already long list. 

At the end of the day, we can ask ourselves whether there was a moment that felt pleasant, comforting, or simply peaceful. 

Some days, nothing may come to mind, and that is okay. The goal is not to find something positive in every hard moment, but to make space for ordinary experiences that caring might otherwise hide. 

A shared smile will not resolve the challenges of dementia. A peaceful morning cannot make up for months of lost sleep, and a few minutes of enjoyment cannot replace the real support carers need. Despite the uncertainty of dementia, life still holds experiences of warmth, humour, familiarity, and connection. And sometimes, rather than a dramatic breakthrough or a remarkable display of strength, it is these small, ordinary moments that help us through another day. 

From the Carers’ Group: Ask the Expert – With a Difference 

When carers’ questions shape the conversation 

by Jurgen Schwarz

Carers supporting individuals with dementia frequently encounter questions that are challenging to articulate. Some relate to practical issues, such as managing behavioural changes or navigating the social care system. Others are more personal, including coping with feelings of resentment, questioning whether it is normal to grieve for someone who is still present, or establishing boundaries without experiencing guilt. 

While carers’ groups often invite professionals to deliver presentations on dementia-related topics, an alternative approach centres carers’ experiences and perspectives. 

Rather than presuming what information carers need, it helps to ask directly what topics they want to discuss. 

Empowering carers to express their concerns 

A carers’ group may invite a dementia specialist, psychologist, social worker, or counsellor to participate in an informal question-and-answer session. Before the meeting, participants can submit questions anonymously, either on paper or through a confidential online form. 

No specific subject is mandated, and there is no expectation that questions must directly address dementia. Carers are encouraged to raise any issues that trouble, confuse, or occupy their thoughts. 

Anonymity is particularly valuable in this context. Some carers may feel discomfort admitting a desire to escape their responsibilities, while others may hesitate to discuss challenging changes in their relationships or acknowledge moments of impatience with the person they support. 

Anonymous questions can facilitate discussion of topics that might otherwise remain unaddressed. 

Addressing emotional and practical concerns 

These sessions can cover a broad range of topics. For example, participants may inquire about responding to repeated requests to go home, despite already being at home, or explore the emotional impact of transitioning a partner into residential care. 

An important aspect of these discussions is the recognition that not all questions have straightforward answers. 

Professionals may explain dementia-related changes or offer practical strategies for managing difficult situations. However, questions concerning guilt, grief, evolving relationships, or personal boundaries may necessitate opportunities to explore emotions rather than seeking immediate answers. Hearing a professional acknowledge that no perfect solution exists for certain situations can reassure carers. 

Facilitating mutual learning among carers 

While visiting professionals contribute specialist knowledge, carers offer equally valuable insights derived from their lived experiences. 

Questions submitted by one participant may resonate with others in the group. Individuals with extensive caregiving experience may provide perspectives that extend beyond clinical knowledge. 

Such exchanges can foster moments of recognition, enabling carers who previously felt isolated to realise that others have faced similar challenges. 

The facilitator’s role extends beyond providing answers to include encouraging dialogue, while ensuring that participants do not feel compelled to share personal experiences or offer advice. 

Establishing a supportive environment 

For this approach, success depends as much on the atmosphere as on the content of the questions. Participants need to know that their contributions will be treated respectfully and that difficult emotions are welcome. The visiting professional should avoid presenting individual solutions as universally applicable and be prepared to acknowledge the limits of their expertise. 

Group organisers may also permit participants to submit questions without attending the session. This approach ensures that carers who cannot leave the person they support, or who are uncomfortable speaking in groups, can have their concerns addressed. 

The session must not become another instance where carers feel they are being instructed on what to do. 

Recognising diverse forms of expertise 

A key value of an Ask the Expert session is its ability to challenge the assumption that professionals always know what matters most to carers. 

Letting carers choose the questions acknowledges their experiences, priorities, and individual circumstances. In this context, professional knowledge serves as a resource rather than a prescriptive set of instructions. 

In some cases, the most meaningful outcome is not obtaining an answer, but rather realising that a difficult question can be voiced, taken seriously, and shared with others who understand. 

For carers who dedicate much of their lives to meeting others’ needs, having their own questions prioritised in a conversation can be a valuable and affirming experience.

Reflective Pause

Is there something I keep trying to fix that I may need to learn to live alongside? 

Is there an aspect of caregiving that I continually attempt to resolve, but may instead need to accept as part of my ongoing experience? When caring for an individual with dementia, it is natural to seek improvement in their condition. Carers often seek solutions, try different approaches and hope that persistence will eventually ease the challenges they face. However, certain difficulties may remain despite considerable effort.

Persistently searching for solutions can lead to exhaustion, especially when one feels responsible for factors that are ultimately uncontrollable. Reflect on whether there is an aspect of your caregiving experience you still struggle to change. Consider the possible impact of acknowledging this challenge as part of your current reality, rather than continually attempting to resolve it.

This approach does not entail giving up, accepting insufficient support, or relinquishing hope. Instead, it entails recognising the limits of your influence and redirecting some energy toward your own wellbeing.

Consider asking yourself: What is one aspect I could stop expecting myself to fix, and what aid or resources might help me in living alongside it?


Picks of the Month

Families plead for help in ‘cruel’ dementia battle  

https://www.bbc.co.uk/news/articles/cked7qlpe0leo  

 

Bristol researchers take major step towards Alzheimer’s gene therapy  

https://www.bristol.ac.uk/news/2026/september/bristol-researchers-take-major-step-towards-alzheimers-gene-therapy.html  

 

This series of reports provides new insights into the costs and economic impact of dementia  

https://www.alzheimers.org.uk/what-we-do/policy-and-influencing/economic-impact-of-dementia  

This Month’s Thought

“Caring is part of your life. It does not have to become the whole definition of who you are.” 

Further articles by Jurgen:

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